Crowdfunding: Is It Awesome or Awful?

A recent article raises the possibility that Crowdfunding Is Evil: At Least When It Comes to the Public Good.” Writing in Wired magazine, Peter Moskowitz focuses primarily on the work of Daren Brabham of the Annenberg School for Communication and Journalism at USC. Moskowitz begins with the example of teachers who have to resort to crowdfunding to pay for basic school supplies, something that is increasingly necessary as school districts cut back funding. But such efforts can end up making things worse, since the school district sees that the teachers are taking care of their own funding needs, and assume they’re managing just fine without district support!

Misleading medical news: be wary and aware!

Two weeks ago in my blog, I discussed a Yale News story that announced: “Yale researchers discover underlying cause of myeloma.” I pointed out that they had shown evidence that a lipid trigger factor was involved in the development of myeloma in patients with Gaucher’s disease – a rare metabolic disease. And for these patients only. This point was also emphasized in a Health News Review report. Subsequently, Yale News changed the headline of their news release to “Researchers link lipids to one third of myelomas” – conceding that for 70% of patients, there was no link!

Myeloma Forecast for 2016: What’s exciting, what’s real…and who do you trust?

As we start off 2016, there is excitement in the air. Three new drug approvals, the Black Swan Research Initiative® is moving strongly into cure trials; it seems that we have myeloma on the run! Yet the reality is that we all know friends, support group members, patients who are not doing well, whose lives are threatened by myeloma despite all that is new and wonderful.

Crowdfunding for Myeloma Research: Is It a Good Idea?

There has been some discussion lately about an alternative method of funding myeloma research known as crowdfunding. Crowdfunding is the act of raising money from a large number of individuals on the internet for a specific project or venture.

Is this something which might be helpful for the myeloma community? Perhaps.