Misleading medical news: be wary and aware!

Two weeks ago in my blog, I discussed a Yale News story that announced: “Yale researchers discover underlying cause of myeloma.” I pointed out that they had shown evidence that a lipid trigger factor was involved in the development of myeloma in patients with Gaucher’s disease – a rare metabolic disease. And for these patients only. This point was also emphasized in a Health News Review report. Subsequently, Yale News changed the headline of their news release to “Researchers link lipids to one third of myelomas” – conceding that for 70% of patients, there was no link!

To collaborate, or not to collaborate, that is the question

The successes achieved by the IMF’s International Myeloma Working Group (IMWG) are due, in large part, to collaboration. Bringing myeloma researchers together to produce consensus guidelines and to brainstorm about new research ideas, such as the Black Swan Research Initiative® – the IMF’s “Myeloma Moonshot” – has produced significant breakthroughs, advanced understanding and improved patient outcomes.

Black Swan Research Initiative® Update

The Black Swan Research Initiative® (BSRI) is on the brink of several key steps forward, I am happy to report.  Great progress has already been made.

Crowdfunding for Myeloma Research: Is It a Good Idea?

There has been some discussion lately about an alternative method of funding myeloma research known as crowdfunding. Crowdfunding is the act of raising money from a large number of individuals on the internet for a specific project or venture.

Is this something which might be helpful for the myeloma community? Perhaps.